A majority of people with Parkinson’s experience changes in their speech and swallowing. However, little is known about precisely how many people experience such changes at different stages in Parkinson’s; why and under what circumstances these changes become a problem; what those problems are; the impact they have on individuals with Parkinson’s and their family and what support people consider would help them. Such information is vital for improving services and treatment for speech and swallowing problems in Parkinson’s. The majority of studies of daily living difficulties in Parkinson’s have either omitted investigations of problems with speech and swallowing, or low numbers of individuals participating in the studies make these findings restricted, unreliable, or invalid.